Thursday, October 27, 2011

An update (or, rather, two)


1. A friend emailed recently, asking how things are going and what the latest with the new babe is. Kind of made me realize that this pregnancy really is flying by. I feel like we just shared our news, but the calendar tells me that I'm 18 weeks pregnant-- not 7 like I was then-- and the kicks and flutters of new life reinforce that regularly.

We have taken the initial steps in putting a plan together for maternity care-- the rest will be determined at the end of the year/beginning of the next:

I saw the local OB/GYN who delivered Claire when I was 14 weeks along, following routine blood work (anemia: check) and an ultrasound for dating purposes (only 1 day discrepancy at 12 weeks is pretty accurate, so no change in due date there-- though I always welcome the opportunity to push the due date back). All was normal at that visit, including the baby's heart rate of 151bpm.

We set up an appointment with Dr. Smith (one of Aubrey's cardiologists) for a fetal echocardiogram (required each pregnancy for me since Aubrey) on November 21st. I will be 22 weeks along then.

I've decided to take advantage of an already-planned trip to Syracuse to meet with the MFM there that day so that I can warn them of my potential desire to deliver with them. I'm still not sure whether I will want to go to Syracuse or Burlington for the delivery, but I figure meeting a doctor or two may help me sort that out and since I'll be in the area anyway, I might as well.

My local doctor is very ready-- dare I say eager?!-- to help me arrange an out-of-the-area delivery. I know that he is genuinely convinced the local hospitals here are simply not equipped for VBACs. I'm not a medical professional so I can't fully comment on that, but at least he's being super helpful. My next appointment with him is December 21st.

Yes, you read that right and, yes, that means I will have gone 12 weeks between my first and second regular OB appointments. I asked for a more laid-back schedule and I got it!


2. In other health news (but not completely unrelated, since Aubrey's little heart is exactly how we wound up dealing with things like VBACs and high-risk pregnancies in the first place!), we received a letter from Aubrey's cardiologists letting us know that they and the pediatric cardiology surgeon in Rochester, NY discussed Aubrey in their most recent monthly conference, just as Dr. Byrum told me at the latest appointment that they would. I don't completely understand all the jargon or how to better explain it, so I'll just quote part of the latest update:

The principle question that we focused on was whether Aubrey would be able to be repaired leaving four heart chambers or whether it would be in her better interest to go toward what is called a single ventricle pathway of surgery. It would appear that an attempt to do a surgery to leave her with four heart chambers would be highly complicated and potentially fraught on both short and long term with difficulties including the need for reoperations.

...We discussed possibly a catheterization for her as an outpatient in the spring of 2012 and discuss the possibility of surgery for her in the summer of 2012; but, it could just as easily wait another whole year.

I could tell you that my heart seizes a bit when reading words like "highly complicated" and "fraught on both short and long term" in anything having to do with my beautiful little girl, but really, I just need to say that I am so thankful for the words "it could just as easily wait another whole year."

The truth is that we don't know exactly what lies ahead for Aubrey. Even her cardiologists aren't certain.

But she's okay right now.

And we serve a good and faithful and powerful God.

Which leaves us time to pray, to seek counsel, to look for second opinions (and third, if Daniel chooses to humor my paranoia!), and to continue learning how to trust and treasure this moment as the tremendous gift that it is.

 

6 comments:

  1. My goodness I love that little girl. 

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  2. I think if I had stayed wit Dr. Lyons I would have seen him a grand total of 3 times! He really is awesome in that department!

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  3. I called Tim down to actually read the portion from the doctors so I didn't butcher it when I tried to tell him what we need to pray for exactly. We do serve an amazing and faithful God!!!I love the pregnancy update! Thanks for the PICTURE!!!!!!!!!!!!!!! You know I always love a good baby belly pic!

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  4. Thank you for the update and I just want to say that I LOVE that photo of Aubrey!!

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  5. praying for your beautiful babe's heart!

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  6. Thanks for the updates! Continuing to pray...

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